A study by Science Direct showed that chronic conditions can disrupt many aspects of life including identity, anticipated life trajectories and social relationships. Friendship relationships are important sources of support for chronic condition management.
However, for individuals with chronic conditions, developing and maintaining close friendships may be particularly difficult.
Five of the best ways to ensure that you remain connected are:
Joining a National Charity/National Support Group
One positive to come from COVID is the increasing number of support groups offered by different charities. Many of these are hosted online making them more accessible. Smaller charities are also able to offer support where local groups don’t exist. You’ll learn a lot about your condition and have the opportunity to chat with others who are going through the same problems that you are. Many are led by medical professionals so you’ll be able to ask lots of questions -- or if you prefer you can just listen. You’ll still benefit.
Engaging fully with your local medical team
Make the most of the team of medical professionals that are involved in your care. Ensure you ask plenty of questions at appointments. Ask them for referrals to other agencies who may be able to support you. This could include mental health teams if you are struggling to come to terms with a diagnosis. It could also be signposting to support groups, other medical professionals and even self-referral to groups like Mind or Re-think.
Attending local support groups — online or in-person
Depending on the size of the charity and area local support groups may be in person or online or even a combination of the two. Many offer the chance to join online groups regardless of where you are located. These provide an opportunity for people to share personal experiences and feelings, coping strategies, or firsthand information about diseases or treatments.
Finding a local exercise group/friendship group/art group
If you have an interest or hobby then try to connect with others who enjoy the same activity as you do. There are so many opportunities available. Many local libraries offer warm hubs and friendship cafes or meetings. Volunteers run walking groups and arts and crafts groups. Look out for listings in your local paper, online, through social media or local parish magazines.
Joining an online community with multi-condition members
Many online groups offer a combination of exercise and social networks that you can be a part of. These save on energy and provide a great deal of support to those who utilise them. A shining example is Mobilates. A company offering adaptive pilates sessions to its members but also has togetherness sessions, a book club, social chats, craft sessions and opportunities to meet in person at classes and on one-day retreats.
The Research
Research shows that peer support can improve people’s well-being, meaning they have fewer hospital stays, larger support networks, and better self-esteem, confidence and social skills.
Some studies have demonstrated that statistically significant improvements in pain, psychological outcomes, self-efficacy, self-care, and quality of life resulting from this kind of intervention.
However, if you choose to connect with others make sure it is right for you. Try one thing at a time and see how you get on. Trying too many things at once can be overwhelming and cause additional fatigue which you need to avoid.
Helpful Links
Friendship, connectedness and (in)authenticity for those with chronic illness: Trading in one social gain for another: https://www.sciencedirect.com/science/article/pii/S2667321523000306#
Facilitated group work for people with long-term conditions: a systematic review of benefits from studies of group-work interventions: https://bjgp.org/content/69/682/e363#
Support groups: Make connections, get help: https://www.mayoclinic.org/healthy-lifestyle/stress-management/in-depth/support-groups/art-20044655
Support Groups: Types, Benefits, and What to Expect: https://www.helpguide.org/articles/therapy-medication/support-groups.htm
Mobilates: https://www.mobilates.com/