The Pituitary Foundation supports those living with a pituitary condition and their friends and family. The range of topics is vast and includes sections on:
Work and School
Medical
Health and Well-being
Clothing and accessories
Finance and planning
Caring for someone with a Pituitary condition and
Travelling
Find out more information here: https://www.pituitary.org.uk/information-index/living-with-a-pituitary-condition/
Each section has a selection of helpful links to other organisations that can offer general and specific support to patients and carers.
New Psychological Support Launched
The Pituitary Foundation and Rareminds (who are a UK-based charity supporting the mental health of those with rare diseases and family members) have joined forces to support those whose lives are impacted by Pituitary Conditions. Those with enhanced membership can access a series of eight counselling sessions. Topics covered include:
Impact on your family, social or work relationships
Anxiety or low mood
Identity (including feeling different, lonely or isolated)
Dealing with difficult, unpredictable or increasing symptoms
The psychological burden of being the ‘pituitary condition expert’
Coping with unpleasant tests or treatment
Making difficult choices
Worries about the future
Find out full details here: https://www.pituitary.org.uk/information/psychological-support/
Helplines are a lifeline
There are two different helplines on offer. One with an Endocrine nurse that you can call for support and advice — you can even book a slot for this.
There is also a general helpline for questions that you may have and an email form to complete which is for less pressing matters as the foundation aims to respond within 10 working days.
You can find out full details here: https://www.pituitary.org.uk/helplines/
Support Groups Offer Variety
The Pituitary Foundation have a wide range of options when it comes to support groups. There are some local groups — some in-person and some online along with condition-specific and age-specific groups.
Check out the complete list of options here: https://www.pituitary.org.uk/support-groups/?current_page=1
Whether you are newly diagnosed or just in need of some extra help and guidance there is something available to everyone. If you have never reached out to The Pituitary Foundation it's worth signing up for one of their online Welcome events which will give you a great insight into what support is available.
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