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Writer's pictureSuzanne Warren

Resources, support and publications from The Pituitary Foundation



The Pituitary Foundation supports those living with a pituitary condition and their friends and family. The range of topics is vast and includes sections on:


  • Work and School

  • Medical

  • Health and Well-being

  • Clothing and accessories

  • Finance and planning

  • Caring for someone with a Pituitary condition and

  • Travelling



Each section has a selection of helpful links to other organisations that can offer general and specific support to patients and carers.


New Psychological Support Launched

The Pituitary Foundation and Rareminds (who are a UK-based charity supporting the mental health of those with rare diseases and family members) have joined forces to support those whose lives are impacted by Pituitary Conditions. Those with enhanced membership can access a series of eight counselling sessions. Topics covered include:


  • Impact on your family, social or work relationships

  • Anxiety or low mood

  • Identity (including feeling different, lonely or isolated)

  • Dealing with difficult, unpredictable or increasing symptoms

  • The psychological burden of being the ‘pituitary condition expert’

  • Coping with unpleasant tests or treatment

  • Making difficult choices

  • Worries about the future



Helplines are a lifeline

There are two different helplines on offer. One with an Endocrine nurse that you can call for support and advice — you can even book a slot for this.


There is also a general helpline for questions that you may have and an email form to complete which is for less pressing matters as the foundation aims to respond within 10 working days.


You can find out full details here: https://www.pituitary.org.uk/helplines/


Support Groups Offer Variety

The Pituitary Foundation have a wide range of options when it comes to support groups. There are some local groups — some in-person and some online along with condition-specific and age-specific groups.


Check out the complete list of options here: https://www.pituitary.org.uk/support-groups/?current_page=1


Whether you are newly diagnosed or just in need of some extra help and guidance there is something available to everyone. If you have never reached out to The Pituitary Foundation it's worth signing up for one of their online Welcome events which will give you a great insight into what support is available.

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