The Pituitary Foundation is holding its annual awareness month in October. The 2022 focus is to live well with pituitary conditions. Patient stories, alongside a series of online conference videos and Q&A sessions. Engaging and empowering patients, medical professionals and those who care for and support them*.
Who are The Pituitary Foundation?
The UK’s leading charity supporting people with pituitary conditions. Established in 1994. For people in the UK who are affected by disorders of the pituitary gland, as well as their families, friends and carers.
Pituitary Conditions are rare. They exist when the endocrine system fails to regulate the correct release of hormones to the body. These regulate important bodily functions. Affecting 80,000 people in the UK.
Why do we need an awareness month?
The words Cushing’s, acromegaly, diabetes insipidus and hypopituitarism and pituitary insufficiency are not things the average person would understand — but they should
To share the many symptoms associated with Pituitary conditions. A diagnosis can be challenging and often takes over 6 years
Patients experience debilitating symptoms
Most conditions are lifelong and can be life-altering. Including having to take daily medication.
To enable diagnosis and access to high-quality treatment, information and support
Allowing patients a platform to talk openly about their health.
What's Involved?
In her first awareness month since becoming CEO Ren Renwick said: “We are urging patients and healthcare professionals to join our vibrant program of talks and events, as well as taking the moment to tell their stories to friends and colleagues. By working together, we can raise awareness and help all pituitary patients to live well with their condition.”
There's a Living Well 2022 awareness month information page which includes how to:
Contact Local Press
Raise awareness in schools, GP surgeries, hospitals, groups and public spaces
Walk for awareness &
Host a coffee morning.
Programme and event tickets are also available.
The volunteer pack includes a timeline of events and press releases, images and example social media posts.
How does The Pituitary Foundation support?
A dedicated nurse helpline
Work with leading medical experts to improve patient care.
Online and printable resources.
Regular Twitter chats and live FaceBook Q&A sessions
Links to other relevant charities such as Addison’s Disease Self-Help Group
Pituitary Life Magazines (Membership required)
Regular e-newsletters
Summary
Endocrine conditions have many different and often challenging symptoms as this list identifies. Something that doctors do not have enough training on. Why it is so important to have an open space for current patients to promote this side of their condition. To spare the difficulties and trauma associated with multiple years of distressing symptoms and the diagnosis. Please get involved. Support the future generation. Allow yourself and others to Live Well!
Contact Details:
Facebook: The Pituitary Foundation
Twitter: @pituitary_org
Instagram: @pituitaryfoundation
LinkedIn: The Pituitary Foundation
*Please remember that these blogs are very real to us. We are on the same journey. It’s tough, slow and frustrating. Most of the Scenarios we face ourselves. Sometimes we find what we print useful. Other times we don’t. It’s included because everyone's journey is different. We have passionate perseverance to help others. To dispose of all content would be a waste and a disservice to our readers.
The Pituitary Foundation - Living Well Awareness Month
The Pituitary Foundation - Programme and Event Tickets
https://www.pituitary.org.uk/pituitary-awareness-month-living-well-2022/programme-and-event-tickets/
The Pituitary Foundation - Volunteer Pack